Let Me Introduce You To Eosinophilic Enteropathy

tonight while going through blogtalk radio causing trouble, i stumbled upon a show there about the paranormal and listened to this one guy by the name of Mike Dionne talk about his experiences on the USS Salem the same place that TAPS investigated during this last season of Ghost Hunters. anyways it was great and then he went on to talk about something else that completely floored me and i felt the need to share it and help spread the word on it. so please be patient with reading this…….

I’m going to introduce you to an illness that hits many people but not many know about it. It’s called eosinophilic enteropathy, which includes eosinophlic esophagitis, eosinophilic gastroenteritis, eosinophilic colitis and other eosinophilic disorders. Don’t know what that is? Not many do. What is it you may be asking yourself well it’s

a complicated digestive system disorder in which eosinophils, a type of white blood cell, are found in above-normal amounts in one or more specific places in the digestive system and/or the blood.

When the body wants to attack a substance, such as an allergy-triggering food or airborne allergen, eosinophils respond by moving into the area and releasing a variety of toxins. However, when the body produces too many eosinophils, they can cause chronic inflammation, resulting in tissue damage.

These rare diseases are diagnosed according to where the elevated levels of eosinophils are found:

Eosinophilic esophagitis (esophagus)
Eosinophilic gastritis (stomach)
Eosinophilic enteritis (small intestine)
Eosinophilic colitis (large intestine)
Hypereosinophilic syndrome (blood and any organ)
This condition can be divided into two types, Primary and Secondary. The Primary type is further subdivided into allergic and non-allergic forms. The allergic type occurs in association with food allergies, while the non-allergic form occurs when no obvious cause can be found to explain the high number of eosinophils in the digestive system. Because of this, the non-allergic form is thought to be evidence that the body is attacking itself and considered to be an autoimmune disorder.

Common symptoms may include pain, swelling, skin rash, hives, reflux, choking, difficulty swallowing, nausea, vomitting, loss of appetite, stools containing blood and/or mucus, abdominal cramping, diarrhea, fever, esophageal rings, motility problems, bowel obstruction, bowel or stomach wall thickening (from scar tissue buildup), pseudopolyps, protein loss, anemia, malabsorption, developmental delay, bleeding, and several other symptoms that occur in individual cases. Many people also experience nutritional deficiencies and/or side effects from medications, such as neuropathy (nerve damage) or osteoporosis (decrease in bone mass).

Special amino acid-based formula may be needed as a supplement for those whose diets are so limited that they are unable to obtain enough nutrition from food alone. Some primary forms may require the avoidance of all regular foods and complete reliance on an amino acid-based formula, which may be consumed normally or pumped through a special feeding tube (naso-gastric, gastrostomy or jejunostomy tubes). For the most severe flare-ups or for those who experience problems from all foods and formulas, feeding through a blood vessel (TPN) may be the only remaining option. Some cases also require additional symptom-specific help, such as pain medication. This disease may cause such severe bleeding or nutritional deficiency that they condition may be life threatening if not treated with appropriate medications. Since there is no known cure for Eosinophilic Enteropathy, management of the condition is very important in order to prevent severe damage to the digestive system (and to the organs in the case of Hypereosinophilic syndrome) caused by the high numbers of eosinophils. Because symptoms vary so widely and may minic other conditions, it is important that accurate information and awareness of Eosinophilic Enteropathy is achieved.

Basically you can’t eat food. Mike and Stacey Dionne’s 8 year old son Timmy has this. Well i’m posting this in hopes to help spread the word on it. Any help that you all might be able to do to spread the word on this will be greatly appreciated by the Dionne’s and all of the other people out there that suffer through this. Here is a local news story about Timmy that they shared on youtube.

please visit http://www.curedfoundation.org/ and http://fullspectrumghosthunters.webs.com/ for more information on this and an upcoming benefit they are having. Thank you all for taking the time to read this and again any help you can give either by a donation or by helping spread the word will be greatly appreciated by the Dionne’s.

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7 Responses to “Let Me Introduce You To Eosinophilic Enteropathy”

  1. I wish i had the money to contribute. I will be sharing the twitt with as many as possible!

  2. So, while you are wreaking havoc with the Blog Talkers, you learned something important. That’s some sort of interesting connection… Poor kid though, that’s rough.

  3. […] This post was mentioned on Twitter by GodfatherScooby and Madison Cavanaugh, Deana Van Sant. Deana Van Sant said: RT @GodfatherScooby: let me introduce you to the illness EE, please read & help, either by donation or spread the word http://bit.ly/92hLXB […]

  4. Thank you so much for spreading the word on this! I have two children with this disease and gi issues myself and the support out there is limited – hence the reason we started one in Canada to help patients with this disease. CCOED (www.ccoed.ca) is there just to help others and spread the word.

    Thanks again for posting this and help generating awareness!

  5. […] friend of mine wrote a very important post about a rare disease so check it out and inform yourself a […]

  6. Pls go to awmi.net
    Click ” healing testimonies”
    Click ” eosinophilia enteropathy healed”

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